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M.E.  A FORGOTTEN DISEASE

It is a cruel condition. It can be a crippling condition. The more so because its victims sometimes feel disbelieved, almost as though they were malingerers. But ME is real and frighteningly commonplace. Much good work has been done in British hospitals (particularly St Mary's, Paddington in London) to identify possible causes and to help narrow down the problems of diagnosis.

Diagnosiing ME still takes time and requires a dazzling array of tests. Some busy GPs, perhaps, do not have the time or resources to conduct them. So sometimes all they see are the confusing early symptoms - the headaches, the lack of energy, the inexplicable pains.

But ME sufferers can develop symptoms just as horrific as victims of organo-phosphate poisoning or Gulf War syndrome.

The disease is, at last, being recognised and better treated. It is covered, for example, by the new Disability Discrimination Act which recently came into force. All well and good. But the House of Commons could do more. That is why I am hoping to increase the membership and profile of the existing all-party group for ME. This group currently has just four members. I have joined. Parliamentary groups can sometimes make progress where individuals fail. There is strength in numbers and common sense in including politicians from all parties. I confidently expect that some colleagues who already serve, as I do, on the all-party Organophosphates Group will want to participate.

I have no doubt the medical profession in Bridgwater and West Somerset will be keen to give me their views too - I invite them to do so. I know, sadly, that some of my own constituents are ill with this disease. Their input would be more than helpful.

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There are many helpful websites for ME, but the two campaigning charities listed here may help:

There is also a locally based ME helpline run by Tricia Green

 01984 623040

 

Finally don’t forget the NHS:

 

   
  ©2003,2004 Ian Liddell-Grainger. All rights reserved. www.somersetwest.org.uk